Mia still has her chest tube in that was placed on Saturday however it has twisted at the incision site several times causing irritation. Obviously when it becomes twisted the fluid is not draining properly. Yesterday it put out 20 ccs and today it put out 50 ccs so far. The nurses have been coming in frequently to check it and to redo the dressing. Her chest x-rays have really improved over the past couple of days but there is still come collapse in the left lung allowing the fluid to collect. The plan is to watch the output overnight and look at the chest x-ray in the morning. One of two things is going to happen. The best case scenario would be for the fluid drainage to be minimal and the chest x-ray to look good in the morning and then take out the chest tube and wait 24hrs to take another x-ray to see how the lungs look. The not so good scenario would be that there is still significant fluid and then the doctors would sedate Mia and inject a medicine into the chest tube, clamp it, and rotate her to make sure the medicine coats the lungs to stop the fluid collection. The downside besides another sedation is that it is painful but I am told Mia will not feel it. The nurse also said that it is very rare to have to have this procedure done in a child with TOF. I laughed when she said this because clearly Mia is not the normal straight forward case. I am really hoping for the best case scenario but of course preparing for the not so good scenario knowing that this will probably be the scenario that we will end up with. I know that sounds pessimistic but I am so tired of hoping for the best and ending up with the the "unlikely" scenario. I really want my little girl to "catch a break" in this recovery and for once not have to experience the more painful option. Just once.
Please Pay Attention
23 hours ago