The results of the chest x-ray are in.....and the chest tube has almost completely fallen out thus causing the the left lung to look diminished. We are still not sure if it is all fluid or a combination of collapse and fluid. Tonight the chest tube was removed and will be placed again tommorow morning. Sigh. The good news is Mia isn't showing any signs of being affected by this latest turn of events. We shall see what tommorow brings and hopefully it is all good.
17 comments:
Hello Melinda, I am the wife of Andy Riederer, your grade school friend. I wanted to find out if you lived in Columbus as well. Our son Josh is a pediatric oncology patient at Nationwide Children's, we are there a lot and if that is where Mia is I'd love to stop by when we are there and say hello and see how you guys and Mia are doing.
http://theadventuresoftadpole.blogspot.com/ (it's a little behind, but I am working on that, the relapse took us by surprise.)
That is good news, that she's still doing well. She's about the cutest little patient I've ever seen, that's for sure. Praying that light at the end of the tunnel gets bright SOON.
I'm glad she's doing well despite the set-back. I'm still hoping that the next 24 hours bring additional hope to your family. I'm so ready to see the post in which she's out of ICU and in the step-down ward. Thinking and praying for you ALL.
Thanks for posting those o' so cute photos of Miss Mia right before this post. She is a trooper, a sweetie and a fighter! Hang in there! The sun is bound to come out tomorrow! (insert Annie's theme song here) We are praying that you will continue to make progress toward going home, health and a nice boring day just enjoying everyday life!
Blessings!
Praying for a weekend filled with POSITIVE turn arounds. Glad she didn't seem affected by the latest set-back. I truly believe the Lord will carry her through. I know you long to be home, just enjoying the routines of everday life. Your journey with Mia has put so much into perspective for myself. Hang in there!! <><
Hugs,
Tanya
Melinda,
She is so adorable! Boy, they should use her for advertising or something! Praise God that she doesn't seem to be affected by the setback. I'm praying for more progress and that you guys will have the strength to keep your eyes on the Lord and allow Him to buoy you.
Hang in there!!!
Checking in on sweet Mia...I was happy to see all those darling smiles and her cuddling with her adoring (and adorable) brother. Continuing to pray for strength for you both, and your family...her little body is pulling through...amazing!
Well the smiling pictures just speak HOPE to me.
I know you are feeling about done at this point. I don't have any grand words that are going to make you feel better. Being in the hospital for 2+ weeks with your baby girl S*CKS! I'm sorry to say that on here, but it does and I've been there … and I know it always made me feel better to have someone who knew where I was at that time to *wallow* with me for a minute.
I know too that Fridays were the *worst* days to me (never felt that way about Fridays until being in the hospital last fall with LM), because I knew open-heart patients don't get discharged on the weekend. I did however enjoy that the whole atmosphere seemed a bit more relaxed as nurses would *fudge* on the nighttime checks and doctors were scarce. :)))
I am PRAYING HARD you get moved to a regular room. I know that will brighten your day, and it will mean Miss Mia is one HUGE step closer to home.
Prayers and Hugs Melinda and Mia from Leslie and her Li'l Miss
I should clarify: "doctors are scarce"
Rather: "the morning shuffle of every.single.cardiac.resident.within.20 miles. of the place.has.to.come.in.and.take.a.listen.at.different.times.for 3.hours.straight.every.morning.at.5.am."
:))) Thankful for our heart doctors but grateful when they don't ALL come in on the same day to listen … and at 5 a.m. :))))
So sorry to read this post today. I was so hoping Mia was on her way to a full recovery. Again, my thoughts and prayers are with you and your family!!
Praying!!
I just came across your blog through another and have been reading about Little Mia. We brought our daughter Audrey home in November '08. She also had TOF which was repaired the end of January when she was 17 months.
The road you are on is very much like what we experienced after her OHS. She did not have to have a pacemaker, but so many other similarities are there. We ended up being in the hospital for 3 weeks (which seemed like an eternity) with many ups and downs. She has done incredibly well since then and has had excellent reports from her cardiologist. She also had a small VSD after the surgery, but it has closed on its own since. She is still small on the charts but has grown so much since then, and has no developmental delays now.
I know you are so weary now, and it is so frustrating to see all your daughter is going through. I will pray for Mia and your family and hope she is able to go home soon. I just wanted to encourage you and let you know there is light at the end of the tunnel. It was so hard to go through, but it is worth it all. We are truly blessed to have Audrey, as I know you are with Mia.
I'd be glad to answer any questions if you have them.
In Him,
Julie M
Melissa,
My thoulghts are with you and that sweet bumboo baby girl, what she has gone through is not fair to any of you! As you know my little girl had the Glenn 8 days before yours, once Mia is home you will be so happy at the changes you see in her! It will be worth it all. hugs!!
Sue
Sending warm wished and hugs your way. Hang in there!
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