I am keeping this short because it is getting too difficult to keep rehashing "the latest" to family and friends especially when the latest is another setback. Mia was put back on the ventilator this morning. Once again I kissed my little girl with tears streaming down my face as I left her room for her to go through intubation once again. She had an ultrasound of her diaphragm(sp? too exhausted to look it up) to see if the nerve was injured during surgery. If this is the case they may need to go in and repair it and are also considering placing the pacemaker at the same time. Another possible scenario it that since her body was so malnourished that she is having a difficult time recovering. For now the plan is to keep her on the ventilator for the next couple of days to allow her body to recover.
Please continue to lift us up in prayer. I am so physically and emotionally exhausted. I desperately want some good news and I am struggling why my daughter has had to endure so much in her short life. I am trying to trust in God's plan but right now it is difficult. I am not going to lie, as my daughter has struggled my faith has also. I know I cannot lean on my own understanding but I have to trust in Him.