It has now been three weeks since Mia's first surgery. Three weeks. It isn't long given all that she has been through but I swear I have emotionally and physically felt every minute of these past three weeks. It has been a long journey but I know we will look back 6 months from now and it will just be a "blip on the radar screen."
We moved to our own room yesterday which has been a blessing. The parent accomodations still aren't great but I think it is the first night in three weeks that I have slept through the night not counting being at home. I am still very sleep deprived and my back is really starting to bother me from not sleeping in a bed. Mia is over being at the hospital. She is pulling out every tube and wire she can get her hands on. As I type she has pulled out her cannula for the millionth time today and I am just watching her stats and letting her be. It will be odd to hold her again without having to worry about disrupting a tube or wire.
Today we did manage to get out of the room for a little bit and take a wagon ride. She really enjoyed going to the big fish tank and to the playroom to pick out some new toys. Right now I am trying to get her to nap but she only wants to nap if I am rocking her in the rocking chair. I keep telling her we are starting a bad habit but right now I am in survival mode and will do whatever works and fix it once we are home.
I know everyone wants to know when we think we will be home. I am not even going to try to answer that question for obvious reasons. The doctors say we are in the homestretch. I am just not sure how long the homestretch will last.