The chest tube is not going to be replaced for now. She does still have a small amount of fluid in her lungs but the doctors are hoping it will absorb on its own. We are leaving the PICU tommrow and moving to the step down unit! Yahooo! I am still a little apprehensive about this next step given the challenges of the past couple of weeks but it is certainly a milestone to celebrate! Mia is full of smiles and laughter and the nurses and staff are constantly coming to her room to try and get a smile out of her which she freely gives unless they are touching her. We are constantly getting compliments on how adorable she is! Of course we already knew this!
I left the hospital for home until Sunday. It was hard to leave and I know I will struggle with wanting to be at the hospital this weekend but my parents and Dan are taking turns staying with her. She is in very capable hands even though the mom in me longs to be the one to meet her every need. I am really begining to feel the effects of spending 2 1/2 weeks at the hospital. I was exhausted after a few days but now I am almost delirious at times from sleep deprivation and the rollercoaster ride of emotions. Tonight Christian had a soccer game and he was suppose to be at the field at 5:30pm. I feel asleep for a little bit and woke up at 5:26pm. I asked him why he didn't wake me up and he told me he said "I tried to wake you by calling your name and shaking you but you wouldn't wake up." That is how exhausted I am and if there is any chance that Mia will be coming home in the next week I need to recover.
I am praying for a weekend of continued healing for Mia and continued strength and recovery for myself and my family. Maybe just maybe rumors will begin to swirl about us coming home!
11 comments:
I am so happy that you have good news!!! Glad you are letting your parents and Dan fill in for you this weekend. I hope you will be able to stay in your PJ's all day tomorrow. Maybe some of the other soccer moms can do double duty for you. Don't be afraid to ask for help!
So glad to hear she is moving down. Take care of yourself and know that be giving yourself a break, you will be refreshed and ready to go again!
This is wonderful news. Go to bed as early as you can these next few nights. You definitely need to get caught up on your beauty sleep. Remember that photo of me by the end of Josie's stay in the step-down cardiac unit? It wasn't a pretty picture. Take care of yourself.
This is a HUGE step forward...I am very happy to hear it!! And I'm glad you are home and getting some MUCH needed, solid rest. I know exactly the depth of sleep you were in when your son tried to wake you. When I was in the hospital getting my back surgery over a year ago now, my husband was my main caregiver and 'nurse' so-to-speak...and when we got home, he was pretty delirious when ever I tried to wake him. I felt so bad, as he was giving SO much of himself for ME! And you are EXACTLY that kind of mama to Mia...she is truly, truly blessed! <><
Have a blessed and refreshing weekend!
~Tanya
Praying that rest and refreshing are instore for you! What a journey you've had. Amazing. Praying that the next step will be "easy" for your family! We showed Eli Mia's pictures today.
She's so beautiful!
The nurses are right, Mia is absolute adorable! What a sweetie-pie. What great news that you will hopefully keep moving toward home little by little! And that you are getting an opportunity to rest up for that wonderful homecoming you have been dreaming of for so long. Your boys sound so supportive as well as the rest of your family. What a blessed you all are to each other!
Now Rest Up!
Yeah stepdown unit!!!! Hooray for the chest tube out!!!!! Such HUGE strides!!! I am thrilled for you and praying for you!!!!! Get that much needed rest because you are right that once she comes home she will be running circles around you!!!!
Just spent the day with my beautiful precious granddaughter Mia. Unfortunately she did not get moved to the stepdown unit and had to have a chest tube put back in. But I truly believe this is it-the last setback. I wish all of you who pray for her could see her. She is amazing. She is not only beautiful but she is captivating-she draws you in with her eyes and her smile and there is no escaping her charm. No one has had this whole journey harder than her and yet she smiles and laughs and is completely adorable. Such a lesson she teaches us. I know that God sends us children so that we can see a glimpse of heaven-Mia gives us a panoramic view! I have 3 wonderul grandsons but I am not ashamed to say I dreamed of having a granddaughter. Nothing I ever dreamed was this big or this special. We have never done anything so great to deserve her. I am humbled by God's graciousness and favor on our family. She is one of the best gifts I have ever received!
So glad for the good news!! God is still in control and will keep on healing little Mia! She is just precious!! Her smile is so infectious and to see it there after all that she's been through! Your mom is so right when saying that God gives us glimpses of heaven through children. Glad you are getting the rest that you need too! I had a teeny taste of that last night when I stayed with Gabriel at Akron Children's, he had to have an emergency appendectomy. But, thankfully, it didn't burst and we're home now. But I thought of how much you've endured with staying there, it's so exhausting but you can't think of being anywhere else. Well you all take care and so looking forward to continue to hearing good news! Hugs!!! Jeanie
Great news that Mia is able to move down in the hospital. One step closer to coming home!!
Get some rest as you will be busy chasing your children at home very soon. Hopefully Mia will be able to go home this week!
Praying.....
thanks to Grandma for keeping us updated; I love her comments, they paint such a beautiful picture in my mind. Mia will be over this last hump and on her way home VERY soon, and then the fun begins again! Meals are lined up, we will contact you when to start (I can see you shaking your head no, too bad) so you have a little less pressure to do anything once you get home except play and love on Mia and the boys (Dan too...)
Will be calling you soon, Wendy
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